Sunday, December 6, 2009

Lethargy/Self-pity

I'm not sure if it is depression or plain laziness.  I haven't  been blogging much lately.  Of course, that could also be because of the lack of excitement in my life.

Well ok that's not entirely it.  We've decided to stop trying for a baby for a while.  My period isn't getting any better, in fact it in some ways is worse.  The pain is still there, although managed by pain killers, but it's lasting longer and is heavier.  We've tried for over a year and nothing.  Well we haven't tried THAT hard...it hurts to try so much.  On a recent trip to the GYN, I was told some of the pain I experience seems to be related to autoimmune disorders.  Seriously?  So sex is painful and it's just another by-product of other diseases?  Just kill me now.  She did say she didn't know what the connection is, only that a lot of women who have similar pain also seem to have immunity issues.

I have also been on steroids for a long time and can't keep going on that.  I need to go on some real RA drugs and those aren't good for babies unless you want a super pharmaceutical mutant baby.

I don't feel like a real woman.  I feel really dumb just TYPING that statement but it's true.

I'm sure once my hormones even out that I will feel better about it.  Having a birthday coming up isn't helping as the TICK TICK TICK sound just gets fucking louder.  Plus I'm having all these dreams lately about our children-seeing them, losing them, not being able to have them....they are so real.

It's not meant to be right now.  In the meantime we'll keep working towards our goal of getting a house and getting me healthier.  I have been in denial and I can't live that way anymore.  It isn't going to get better with nutrition, willpower, bare minimum medication, etc.  This is my life now.  Whether I want it or not, reality is setting in.  I just don't want to be super medicated but hey, what's one or two more drugs in my system?

All right, enough whining and bitching.  Life is hard, shit happens, etc. etc. etc.   I'll get over it and venting is helpful.  Thanks for listening to my discombobulated bitch-fest.

Here are some crafty things I've been working on lately.  I've only completed one and a half so far because I've been too damn depressed to do anymore than that.  *sigh*  I'll get them finished soon!



Monday, November 23, 2009

Da ‘hood

Since the day we moved here to this neighborhood two years ago, it's been crazy.  I've witnessed and gone to court for a domestic assault case, watched a kid selling drugs in the middle of the afternoon and watched little kids wandering around at all hours.  Pizza Hut quit delivering to our house after dark because they've been robbed too often.  Last Thursday/Friday morning we woke up at 3AM to hear gun shots outside our house.  It was terrifying and as far as I know, no one has been caught.  I guess no one was murdered so that is good.  I was worried about stray bullets hitting us but thankfully we weren't in the trajectory.

Talk about motivation to get the hell out of this area.  I'll definitely check out the crime maps before we move though.  I just want to live somewhere in peace.  I have to admit I'm nervous in my own home.  Thank god I have loud dogs...they are a good deterrent, I hope.

So here is what our 'hood looks like.  Seems pretty peaceful, doesn't it?

Saturday, November 7, 2009

Memories of Fort Berthold

Last night I attended a special opening for the American Indian Art gallery at the Nelson-Atkins.  I listened to some really wonderful speakers discuss the past indignities and abuses suffered by the AI people and how we are all working now to address the past and better our future.  The Mayor and the Governor were there, as well as two very influential American Indian people who both have contacts with Washington, D.C.  The Nelson worked very hard to make the exhibit a venue for American Indian voices rather than an exhibit about Indians.  I was very moved to hear the speakers and even more moved to listen to the AI ceremonies that occurred right after.  I say "listen" because I couldn't see a damn thing through the crowd.  However I did hear the drums and the signers and listened to the prayer.

I haven't been to a pow wow since I lived in Nebraska.  The music was something I heard a lot growing up as one of my aunts had a lot of friends on the reservation.  Growing up in North Dakota, the American Indians were the only minority and I heard a lot of racist jokes and derogatory things about the AI's.  Those jokes and statements always made me uncomfortable but an incident I experienced on a reservation really changed me forever.

My aunts took me up to Fort Berthold (home of the Hidatsa, Mandan and Arikara tribes) one winter not too long after my mom died.  We were taking up a bunch of furniture to the reservation because my dad no longer thought we needed it.  He was "purging" the house of mom and anything that reminded him of her.  My aunts for whatever reason decided it would be good for me to see people who didn't have as much as I did.  Apparently I needed a "life lesson" because I was spoiled in their eyes.  Maybe I was a little spoiled...



I remember sitting in the back of that cold van, listening to tribal drum songs on tape that my aunt loved.  I was scared; I hated being away from home, among people I didn't know.  I'm still like that.

When we got there, I was taken into the reservation's community center where they were getting ready for a big pow wow.  I was very aware of the fact I was the only white kid there.  I've always been shy and had a hard time making friends but I was hopeful some kids would talk to me.  Not a chance.  The kids took an instant dislike to me, snickering at me and even turning the lights out on me in the bathroom while I was relieving myself.  I was terrified and struggled to find my way out of a strange public restroom.  But I didn't tell my aunts what happened.

My other memories were of watching people cook.  There were some very nice ladies there who explained to me what they were doing.  That's when I first saw the ingredients for tripe soup.  I made sure not to eat the tripe soup when supper time came.  But mostly I just kept to myself, observing people.  We slept in that cold van at night and I remember thinking what a lonely place it was there.

The last night we were there was the night of the big pow wow.  The dancers were in full regalia and I had never seen costumes like that.  Feathers and bells....appliqued felt....beads....staffs and headdresses.  It was very alien to me and my Protestant German upbringing.  The drums and the singing were so loud and hypnotic.  I watched from behind the circle of onlookers as they danced around and around.  I had no idea, and still don't know, what it all meant.



At the end there was some kind of ceremony....I'm not sure what it was called.  Some people entered the circle, mostly what I thought were older, distinguished members of the tribe, and went around the inside of the circle, shaking hands with everyone who comprised the outer circle.   I thought that was very neat and it was something I understood.  Shaking hands!  Us white people do that too!  To my horror however, a white woman pushed me into the circle and told me to walk around and shake hands as well.  I tried to leave the circle but she blocked my way.  I hated being in the center of attention amongst people I knew, so this was like a nightmare.  But there were enough encouraging smiles to get me started.  I remember the older people clasping my hand and how weathered and soft their hands were.  They had kind smiles too.  Emboldened by their kindness, I moved around the circle, sticking out my hand to everyone.  And halfway through I came to the kids.  My smile frozen to my face, I stuck out my hand.  And each kid looked me straight in the eye and refused to take my hand.  I felt hurt and humiliated.  I quickly finished moving through the circle and retreated back into the corner.

That's when I understood what racism felt like.  I hadn't done anything to these children except I was white and I was an outsider.

Later that night there was a drawing for a star quilt and my aunt won it.  It was a beautiful dark rose quilt, very similar in pattern to this one:



I left Fort Berthold with mixed emotions.  I was happy to go back home but bothered by what had happened between myself and those other children.  As an adult, I took a lot of time and interest during my academic career to study Native American art, anthropology and history.  I wanted to know what happened to the American Indians to make those kids hate me so much.  There wasn't a lack of information on the history between the missionaries, the military, the government, the settlers and the American Indians.  It's pretty tragic.  I can't change what happened but I can be an advocate for what I feel is right: honoring their traditions, understanding both our histories and not using them as racist mascots.  I don't see a lot of difference between the mascot for the Cleveland Indians and a black Sambo.

The other thing I took from that experience is to know what racism feels like.  And to make a conscious effort never to treat others that way.  For a little kid, that was a pretty important lesson.

Years later, as an adult, I finally told my aunt what happened there.  She wondered why I hadn't told her what was going on that weekend.  I told her I felt somehow I deserved it because I was an outsider.  And I told her the lesson I learned from it all.

She then gave me that rose star quilt and told me I had earned it.  I type this nestled under that very quilt and feel quite honored to have it.  The story of where it came from will always be passed down with it.

I didn't get to see the new galleries last night as my friend and I had to leave early.  But I plan to go back next weekend for the public opening.  I'm looking forward to seeing the dancers and singers they have lined up next weekend.  And to honor those artists, historic and contemporary, from home.

This is an Arikara shield, on display at the Nelson-Atkins:

Sunday, November 1, 2009

Halloween photos!

We had a nice Halloween!  Ron and I decided to go as Fred and Daphne from Scooby Doo.  There were pre-packaged costumes so no work on our part.  We headed off to the party in Independence, not knowing hardly anyone.  All the people were super friendly and awesome.  What a great group!  They were also really creative and fun with their costumes.  Due to the cats though we could only stay a couple hours but it was worth the trip.

Here are some photos from the night.  I will probably get names wrong, sorry in advance!

Daphne

My Daphne costume



Ron as Fred



Detail of the Glory Hole costume



Liz, I can't remember her husband's name and Ronnie's "penis" in the background



This is the normal look I give my husband, even out of costume.  Notice the "Scooby" at our feet.  Dogs can smell a dog lover in the room!



My beautiful friend Summer who rocks in so many ways



Summer and I....I feel like the Amazon woman with no neck in this photo!

Hope everyone else had a good Halloween!

Rheumatoid arthritis

Lately I've been feeling a lot better mentally and physically.  Some days I think I can go back to a 40 hour work week.  And then I hit a set back.  I paid really close attention to my symptoms this week though and tried to analyze things as they came up.  I'm too lazy and inconsistent to do a symptom diary though.  Yes, I lick ass.  Such is life.

I thought perhaps if I avoided stress completely, kept up on sleep and all my medications, I would be able to control my health.  How egomaniac is that?  You can't control everything.  You can be doing everything right, everything within your control, and still feel like shit.  It really hit me on Friday.  I had organized a potluck for Halloween at work, assisted a researcher all morning and then watched the desk most of the afternoon.  I did some running around and helped people out.  By 1:00 I could feel a weight in my chest and the skin on my face was red and felt like it was on fire.  By the end of the afternoon I was really run down.  When I got home, I felt like there was a fire lit in my torso, my knees were stiff and sore and I was limping.  I was shaking a lot too.

I really did have a good week overall.  I was able to participate in some professional development and networking at a symposium.  I got some things done at work.  I cut out some toxic people from my life too which felt extremely liberating.

My point:  I did everything seemingly right but I had a flare up nonetheless.  I was just tired out.  I did too much and my body rebelled.  What's really hard is that I know to people who don't know me well, I look pretty healthy.  I'm young and not toooooo overweight.  I think it's hard for people to understand that you can look great on the outside but feel shitty on the inside.  However, when I think about it....I must not look too healthy all the time.  I've had strangers offer to help me carry my groceries and insist on having me do the drive through pick-up.  Some days I lean heavily on the shopping cart and limp along.  Or days when my elbows and arms ache so bad, I hold them close to my body and have a hard time picking up the littlest thing.  So I guess when I think about it, there are people who intuitively pay attention to body language more than others.  Those are the kinds of people who pick up on this stuff.

So lesson learned.  I can't always control when a flare up occurs.  Gotcha.  I'll keep that in mind.

Wednesday, October 28, 2009

Catching up

Here is a quick recap:  We've kept somewhat busy on the weekends which can be both good and bad.  We finally used our free tickets to the KC Renaissance Festival and had a nice time eating a turkey leg and drinking Irish ale.  Also in the last couple of weeks we saw Zombieland and Paranormal Activity.  Both very awesome.  If you are looking for a laugh, I highly recommend Zombieland.  Speaking of zombies, Maul of the Dead is at the Coterie and Roxanne and I saw that last weekend.  It was pretty fun!  Great theatre group, everyone should go!  What else...oh!  A good friend from high school dropped in and it was awesome catching up with him.  I really miss familiar faces from home!

We are also still going through the home buyer's program.  Our counselor thinks we'll be in the purchasing phase soon.  I really hope that's true!  We'll see though.  We may hit a waiting period but that's ok.  I'm totally cool with moving in the spring rather then the winter.  Either way, we are hiring movers this time!  I can't physically help Ron lift half this stuff so we'll need a little help.  I'm so freakin' excited and scared.  Basically I'm scared of the realities of fixing everything yourself....and having to pay for it.  I think I can handle it though.

I recently had a really negative experience with some people I used to call friends.  However I did get something positive from the situation:  I've let my diseases and illnesses shut me off from people.  I'm really going to try to talk to people more often and get together with locals at least once a month or so.  It can be really tough sometimes...when I'm tired out, I just need to rest.  Sleep.  Recharge.  A lot of things like housework and socializing get neglected when you don't feel well.  Unfortunately these people, who I thought knew what was going on, took my absences personally.  As if I didn't like them and was using my health as a reason not to see them.  I think that's pretty silly and thought if a person felt upset, they would talk to me about it.  But whatever makes a person feel good about themselves...  It feels really, really wonderful to cut out negative people from my life.  No more stress on that front...what a relief!  Now if I can only get work to go a little better, I think things would be perfect!

Here are images of the last three projects I worked on.  I have some ideas of things I need and want to do soon.  Some of them involve Christmas presents.  I better get started on those!  November will probably go very quickly.

BC tote bag
Come Get Some tote bag feature the almighty Bruce Campbell!

Death, Jan/Feb

The first of the 1898 Antikamnia Calendar series.

Verbal and Emotional Abuse

This was a piece done to recognize domestic abuse.  Yes, it's a personal story.  No, not going to blog about it.  However you can check out Craftster if you want to know more about the piece.  Enough said on that.

Rowdy is shrieking at me to go outside so I'm cutting off the blog for now.  Expect some goofy Halloween pictures next week!

Saturday, October 10, 2009

Mas besser

Things are better.  Why you ask?  Well I got a new endocrinologist who agreed to ramp up my Synthroid a bit.  Yes, my levels appeared normal but I didn't feel right.  Most docs at this point would argue it's all in my head, it's the RA, it's the fibro, I'm crazy, etc.  This one actually agreed to let me try a higher dose.  And guess what?  I feel better!  More energy, less depressed.  What a concept-listening to the patient.  Gnarly.

We also had our first one-on-one meeting with a NACA representative.  Although she is an ardent animal hater, we were happy with our session.  If all goes well, Ron and I will be in our first home together in around 6 months.  No money down, no closing costs, fixed rate, low mortgage.  No shit.  I was so happy to hear that, I had to do another self-evaluation of my priorities.  Is it more important for me to find my dream job right now?  Or is getting a home and being settled more important?  Unfortunately I'm putting my career second, or third.  I want to be happy with my job everyday but uprooting again and moving to a different state is going to be so hard.  I'm just starting to feel better and don't want to start over with doctors.  Therefore I decided to withdraw my applications for jobs out of state.  I'm really excited to be in my very first home!!

We've also got a lot to do this weekend.  It's cold though so that might limit how much we do.  Today is another Zombie Walk which starts at 3:00 on the Plaza.  The high is only 49 degrees today so I'm unsure if I really want to run around outside.  Speaking of zombies, we also really want to see Zombieland this weekend.  Perhaps we'll do that instead.  And tomorrow night we have tickets to see Lewis Black, one of Ron's favorite comedians.  We're pretty geeked about that!

Finally, here is my cross-stitch that I referred to in a previous post.  The recipient received it so I was able to make the photo public finally.  I kind of miss this piece.  It looked good sitting in our living room.

Crumb Catchers

I did a piece yesterday for a Craftster challenge and I'll have that posted by Monday.  I'm also working on a piece I patterned after an obscure 1898 calendar.  Hopefully that will be done soon.  I've got to stitch something together to trade with a woman at work who makes and fixes jewelry.  I've got some things for her to fix!

That is about all I can think of for now.  This is a busy month so I'm sure there will be more blog posts to come.  Tschus!