Once in a while, my tired, Mommy/fibro brain allows a shaft of light inside my head long enough for me to form a few coherent and relevant thoughts. Spell-check helps too. I just read this article about feeling beautiful when you live with an autoimmune disease. Personally I have gone many days without a shower, without brushing my hair, without dressing in proper clothes, let alone not leaving the house. It's hard to have the energy to care about your looks. So I appreciated this article on that level alone.
But then I read through the comments and was surprised to see how many people bitched and griped, saying the article is superficial. Simply putting on lipstick doesn't transform your whole outlook or how you physically feel. Putting on a cute outfit doesn't mean diddly shit when you can't get out of bed, or take a shower, as I find myself going without on many occasions. I get that, I do. I go through waves of anger, acceptance, sloth and defiance. But I have to say that on days when I can't primp myself a little, putting on a little of my favorite perfume makes a difference in how I feel about myself in that moment. It's not perfect, but sometimes it's enough.
However, I do agree a lot of these articles make it sound like the deep psychological issues that accompany physical pain and limitations are easy to fix with just a quick swipe of lipstick or a snazzy sweater. Patients like us aren't looking to be coddled or pitied, but we don't want to be condescended either. Shit happens. My new normal is to always have pain or discomfort on any given day. Hell, I feel like shit at least a little bit all the time, so I didn't even realize I was running a fever from an infection this week. I just figured it was the changes from the rainy weather that so often wreak havoc on joints and sinuses. That's life. We either learn to make the efforts to look nice or we accept that yoga pants and tshirts are good enough for the day. Do your best, that's all you can do.
Tschus.
